Supporting families at the Sternenbrücke children’s hospice in Hamburg for almost 20 years
Families with a terminally ill child must often embark on a journey that is not only marked by pain and sadness. Their everyday life is also especially difficult and strenuous. Mothers and fathers and – from a certain age on – brothers and sisters, too, are plagued by constant worries about what will happen in the future. They are uncertain about how the child’s illness will develop and how the situation as a whole will affect them both now and in the future. Will we be able to be together next summer? What will next Christmas be like? Will our sick child still be able to sit then? Especially in the case of rare metabolic and muscular disorders, from which many of the children in Sternenbrücke suffer, it is often only with difficulty that prognoses can be made. And this leads to even greater uncertainty.